5 common myths about epilepsy

Written by LivaNova | Jul 26, 2024 5:23:24 PM

Epilepsy is still misunderstood by many people, which can make life harder for those who have it. Even though doctors know more about epilepsy now and have better ways to treat it, most people's opinions about it haven't changed.

If you're unsure about what it means for someone to have epilepsy, that's perfectly understandable. Sadly, not enough people talk about epilepsy like they should, which keeps those myths going.

We made this article to help clear up five common myths about living with epilepsy and spread the word.

Myth #1: People with epilepsy have limited lives

Contrary to this myth, people with epilepsy can lead rich and fulfilling lives. Through effective management and support systems, many individuals with epilepsy thrive in their personal and professional lives, contributing meaningfully to society.

Myth #2: Seizures are contagious and severe

Seizures are not contagious, and their severity varies significantly among individuals. Seizures can happen in various forms and intensities. What triggers a seizure and the way they manifest is unique for each person with epilepsy.

Myth #3: You should put something in the mouth of someone having a seizure

One of the most dangerous myths surrounding seizure first aid is the belief that objects should be placed in the mouth of the individual. This action can actually result in serious injury. Instead, the focus should be on ensuring the individual's safety by gently guiding them to the ground, cushioning their head, and removing any nearby hazards to prevent injury during the seizure.

Myth #4: Epilepsy is a rare uncontrollable mental illness

Epilepsy is more common than many people realize, affecting millions worldwide. While some forms of epilepsy may bring on challenges in seizure control, effective treatment options and support mechanisms can improve quality of life. Epilepsy can impact mental health due to its effects on daily life and societal stigma, but it is not a mental illness itself.

Myth #5: Medication cures epilepsy

While medication plays a crucial role in seizure management, it is not a universal cure. Some individuals may experience drug-resistant epilepsy, a condition where seizures continue despite trying 2 or more anti-epileptic medicines that are appropriately prescribed, properly used and well-tolerated, for example. Additionally, medication may come with side effects that impact the person living with epilepsy.

Epilepsy requires a comprehensive approach to various aspects of a person’s health like medication, lifestyle changes and alternative treatment options. It’s important to consult with your healthcare team for personalized guidance on managing epilepsy.

By spreading accurate information and challenging these common epilepsy myths and misconceptions, we can foster more understanding on what it is like to live with epilepsy. Despite prevalent myths, epilepsy is manageable, and individuals can lead fulfilling lives with proper care and support.

If you or someone you care about has epilepsy, we encourage you to seek more information about your condition, especially if you suspect you might have drug-resistant epilepsy, and discuss treatment possibilities with your doctor.

In the link below you can find our Doctor Discussion Guide, a tool full of the key questions that can help you and your doctor determine your current situation and treatment possibilities:

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